Privacy Policy

Last updated: April 2026

ExomeDNA Genetic Data & AI Processing Privacy Addendum

Effective Date: April 2026. This addendum supplements the General Privacy Policy below.

1. What Data We Collect

1.1 Account Data

  • Email address, name (provided at registration)
  • Authentication credentials (managed by Supabase; passwords are hashed, never stored in plaintext)
  • Account preferences and settings

1.2 Genetic Data (Temporary)

  • The raw genetic data file you upload (e.g., from 23andMe or AncestryDNA)
  • This file is processed entirely in working memory (RAM) and is permanently destroyed immediately upon completion of analysis
  • It is never written to disk, stored in a database, logged, or retained in any form
  • This process cannot be reversed — once destroyed, we cannot recover the raw file

1.3 Derived Trait Results (Retained)

  • Polygenic risk scores and percentile rankings
  • Trait categories and confidence ratings
  • Pre-generated educational summaries
  • Display preferences (sentiment colors, lever direction, headline text)

1.4 What Is NOT Retained

  • Gene names (e.g., BRCA1, APOE)
  • rsID identifiers (e.g., rs12345)
  • Genotype values (specific DNA letter sequences)
  • Any data that could be used to reconstruct your original genetic file

This separation between temporary processing data and retained results is enforced at the application architecture level and is fundamental to our privacy design.

2. How We Use Your Data

PurposeData UsedLegal Basis
Generate your trait reportRaw DNA file (temporary), GWAS reference dataYour explicit consent (Service Consent)
Display your resultsDerived trait scores, categoriesService operation under accepted Terms of Service
AI Health Coach responsesTrait names, scores, confidence, summariesYour explicit, separate consent (AI Processing Consent)
Aggregate research (if you opt in)De-identified, aggregated statistics onlyYour explicit consent (Research Consent)
Product updates (if you opt in)Email address onlyYour explicit consent (Marketing Consent)
Service operation and securityBrowser fingerprint (hashed timestamp and user agent — not your IP address), usage logsService operation under accepted Terms of Service

3. AI Health Coach — Data Handling

3.1 AI Provider

ExomeDNA uses Anthropic, PBC (San Francisco, California, USA), operating the Claude language model, as its AI provider for the AI Health Coach feature.

3.2 What Is Sent to Anthropic

When you use the AI Health Coach, the following trait-level data is transmitted to Anthropic:

  • Trait names (e.g., "Caffeine Metabolism")
  • Polygenic risk scores and percentile rankings
  • Confidence ratings
  • Risk direction descriptions
  • Pre-generated trait summaries

3.3 What Is NEVER Sent to Anthropic

The following categories of data are never transmitted to Anthropic or any other external AI service. This restriction is enforced at the application architecture level and cannot be overridden.

  • Raw genetic data or DNA file contents
  • Gene names or gene symbols
  • rsID identifiers
  • Genotype values (DNA letter sequences)
  • Your name, email address, or any personally identifying information

3.4 Zero Data Retention (ZDR)

ExomeDNA is configured to use Anthropic under a Zero Data Retention (ZDR) arrangement. Under this arrangement:

  • Data sent to Anthropic is used solely to generate an immediate response
  • The ZDR arrangement prohibits retention of ExomeDNA request data and prohibits its use for model training, fine-tuning, or any purpose other than generating the requested response
  • ExomeDNA does not authorize Anthropic to store, log, or cache request data from ExomeDNA interactions

3.5 Separate Consent Required

Use of the AI Health Coach requires a separate, standalone consent authorization, provided through a dedicated consent screen in compliance with the Illinois Genetic Information Privacy Act (410 ILCS 513). This consent is distinct from and in addition to the general Terms of Service and Privacy Policy.

4. Data Storage and Security

4.1 Infrastructure

  • Database: Supabase (PostgreSQL), hosted in the United States
  • Frontend: Vercel, hosted in the United States
  • Backend: Render, hosted in the United States
  • AI Processing: Anthropic, processing in the United States

ExomeDNA uses U.S.-based infrastructure providers for all core service operations.

4.2 Security Measures

  • Row-Level Security (RLS) on all user-facing database tables
  • JWT authentication with 30-minute token expiry
  • TLS encryption for all data in transit
  • Encryption at rest for database storage
  • Service role separation (user queries vs. admin operations)

4.3 Raw DNA File Handling

Your raw DNA file is processed in working memory only. It is never:

  • Written to disk or any file system
  • Stored in any database table
  • Logged in application logs
  • Transmitted to any third party
  • Retained after processing completes

5. Data Sharing

ExomeDNA does not sell, license, or rent your genetic data or derived trait results to any third party.

We share data only in the following limited circumstances:

RecipientWhat Is SharedPurposeYour Control
Anthropic (AI provider)Trait-level scores and summaries onlyAI Health Coach responsesRequires separate consent; revocable
Stripe (payment processor)Payment information onlyProcess purchasesRequired for paid tiers
Supabase (infrastructure)Account and results dataDatabase hostingRequired for service operation

No recipient receives raw genetic data, gene names, rsIDs, or genotype values.

6. Your Rights

The following rights are provided in compliance with applicable U.S. privacy laws. ExomeDNA currently serves U.S. residents. References to data access, deletion, and portability rights are provided in accordance with CCPA, Texas HB 2545, and as a matter of best practice — they do not constitute a representation that ExomeDNA is subject to GDPR or other non-U.S. regulatory jurisdiction.

6.1 Access: You may export all your data at any time from Settings > Privacy, or by contacting support@exomedna.com.

6.2 Deletion: You may request deletion of all data from Settings > Privacy or by contacting support@exomedna.com. Deletion is permanent and irreversible. Deletion of derived results is typically immediate. Consent audit records are retained for compliance purposes as described in Section 7.

6.3 Consent Withdrawal: You may revoke any optional consent (AI Processing, Research, Marketing) at any time from Settings > Privacy. Revoking AI Processing consent immediately disables the AI Health Coach. Revoking Service consent requires account deletion.

6.4 Data Portability: You may download your trait results in JSON format from Settings > Privacy or by contacting support@exomedna.com.

6.5 Non-Discrimination: We do not discriminate against you for exercising any of these rights (CCPA § 1798.125).

6.6 Insurance Disclosure: The federal Genetic Information Nondiscrimination Act (GINA) generally protects against genetic discrimination in health insurance and employment. However, GINA does not cover life insurance, disability insurance, or long-term care insurance. You should consider this before uploading genetic data or sharing your results.

7. Data Retention

Data TypeRetention PeriodDeletion Method
Raw DNA fileDuration of processing only (minutes)Destroyed in memory immediately after analysis
Derived trait resultsUntil you request deletion or delete your accountPermanent deletion via Settings > Privacy
Consent recordsRetained for a limited period after account deletion where reasonably necessary to demonstrate compliance, resolve disputes, or satisfy applicable legal obligationsPer Texas HB 2545 and FTC HBNR recordkeeping requirements
Payment recordsAs required by financial regulationsManaged by Stripe per their retention policy

8. Children's Privacy

ExomeDNA does not knowingly collect genetic data from individuals under 18 years of age. If we become aware that we have processed genetic data from a minor, we will immediately delete all associated data.

9. International Transfers

ExomeDNA currently serves U.S. residents and uses U.S.-based infrastructure providers for all core service operations including data processing, storage, and AI interactions. We do not intentionally transfer genetic data or derived results outside the United States.

10. Changes to This Policy

Material changes will be communicated via email at least 30 days before taking effect. For material changes to how ExomeDNA processes genetic data or shares data with third parties, we will request your renewed consent before the change takes effect. For other material changes, your continued use of ExomeDNA after the effective date constitutes acceptance.

11. Contact

For privacy-related inquiries, data access requests, or to exercise any of your rights:

Email: support@exomedna.com

Mailing address: 5900 Balcones Dr, Suite 100, Austin, TX 78731